While Pirates of the Caribbean star Johnny Depp was prepping for the MTV Movie Awards last Sunday, a crew of swashbuckling buccaneers from SCT (Studio City Tattoo, Inc.) were nearby battling Star Wars storm troopers for a very worthy cause, to fight neurofibromatosis (NF). Kids, parents, and volunteers for the Children’s Tumor Foundation's Los Angeles, CA NF Walk enjoyed a fantastic pirate extravaganza provided by SCT’s CEO, Clay Clement, otherwise known as the dread pirate Talderoy.
Locals know that thehas come to rely on Talderoy’s crowd pleasing flagship (SCT) to sail into an event armed with the twin “guns and muscles “of the children’s book, Pirate Santa and the grown-up Mutiny Magazine alongside sword fighters courtesy of Best. Party. Ever. (Winners of Nickelodeon’s Parent’s Choice Awards 2010 and L.A. Parents Best of 2011). Also at the Los Angeles NF Walk were Parenthood actress Monica Potter, NBC Weathercaster Fritz Coleman, comedian Chris Titus (Titus) and actor Dominic Keating (Enterprise). The walk took place on the CBS studio lot and other festivities included a Canines in Costume Contest. Clement, owner of the award winning Studio City Tattoo, Los Angeles’ favorite destination for skin art, is already known for celebrity clients highlighted by Miley Cyrus, Will I Am (Black Eyed Peas), Kirstie Alley (Dancing with the Stars), Cher, Tommy Lee, Slash, Niecy Nash and Lenny Kravits, Josh Kelly ,Katherine Heigl , Kelsey Grammer, Hilary Duff and Jessica Simpson.
In keeping with his family oriented philanthropic efforts, Clement teamed up with the Studio City Chamber of Commerce to support Kim Robinson, a California mother of a young boy with neurofibromatosis (NF), and the Children's Tumor Foundation. Robinson is a passionate voice for spreading the message about neurofibromatosis, a group of genetic disorders that affects one in every 3,000 people and causes tumors to grow in the nervous system. Her cause is personal, but with over 100,000 people affected by NF in the United States and millions more around the world, she hopes her work will not only help find a cure, but also provide much needed support to affected families.
On June 3rd she and her son, 11-year-old Blake, participated in the 2012 Children’s Tumor Foundation LA Walk at the CBS Studio Center and became honorary buccaneers themselves. Along with hundreds of other walkers, the event raised funds and awareness of NF, which is more prevalent than cystic fibrosis, Duchenne muscular dystrophy, and Huntington's disease combined. NF can lead to deafness, blindness, bone abnormalities, learning disabilities, and cancer, but research is shedding new light on those and other complications as the Children’s Tumor Foundation searches for effective treatments for neurofibromatosis.
Since January of 2012, Pirate Santa has won a silver Mom’s Choice Award and a gold Mr. Dad Award. More recently, it was a finalist in the prestigious International Book Award competition. In a recent interview Clement remarked, “We are so grateful for the recognition of our peers and the community. The Pirate Santa crew is committed to continuing to support charities that benefit kids and families. This has been an amazing experience for me as a first time author and a dad. So, there will always be a place in my heart for causes that benefit parents and kids directly.”
About Children’s Tumor Foundation
The Children's Tumor Foundation is a 501(C)(3), not-for-profit organization and recipient of a four-star rating from Charity Navigator. The Foundation is dedicated to improving the health and well-being of the millions of people worldwide living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2 and schwannomatosis. NF causes tumors to grow on nerves throughout the body and can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain. NF is under-recognized and underdiagnosed yet affects more people than cystic fibrosis, Duchenne muscular dystrophy and Huntington’s disease combined. The Children’s Tumor Foundation funds critical research to find treatments for NF. In addition to benefitting those who live with NF, this research is shedding new light on several forms of cancer, brain tumors, bone abnormalities and learning disabilities, ultimately benefiting the broader community.
For more information, please visit http://www.ctf.org.
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http://www.mutinymagazine.com
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